Subscribe
Search
Caregiver Tools
-
Recent Posts
Recent Comments
Archives
Books
Tools - Assisted Speech
Tools - Early ALS
Tools - Later ALS
Useful Web Sites
Category Archives: History
Death from ALS — It May Not Be as Peaceful As You’d Like
If you knew Sharon, don’t read this post — it will just upset you. But if you didn’t know Sharon, and you’re just trying to understand how death comes to an ALS patient, then read on. Sharon died from ALS … Continue reading
Posted in History
4 Comments
An Update
Sharon passed away July 31st, 2011. I’m still trying to get over her death but when I’ve got my head together a little more I plan to come back and fill in the gaps on this web site. As it … Continue reading
Posted in History
Leave a comment
Standing Up Against ALS
The decline in strength of an ALS patient is continuous, but not consistent. There are good days and bad days, good times of the day and bad times of the day. In certain cases, this can cause some interesting conflicts … Continue reading
Posted in History
Leave a comment
Thanksgiving
It’s Thanksgiving Day, and I’m writing this at 6:30 AM. I often get up around 6:00 AM to give me an hour or so of solitary time before Sharon awakens at around 7:30 AM and the hectic morning starts. I … Continue reading
Posted in History
Leave a comment
Transfers are Hell
Given Sharon’s current condition, transfers are my biggest problem; it’s difficult to move Sharon from one place to another. There are certain situations that are everyday occurrences for most people but a nightmare for people with ALS. Just a few … Continue reading
Posted in History
Leave a comment
More and More Use of a Wheelchair
When you’re unfamiliar with ALS, you tend to think of the need for a wheelchair as a sudden thing: one day you don’t need a wheelchair, and the next day you do. The reality for an ALS patient is far … Continue reading
Posted in History
Leave a comment
Introduction
My wife, Sharon, has ALS. ALS stands for Amyotrophic lateral sclerosis, which is too hard to remember or say, so everyone just calls it ALS. It’s also known as Lou Gehrig’s disease after the baseball player who was the first … Continue reading
Posted in History
Leave a comment